3rd October 2016
A heartfelt thank you goes to the Jubilee Sailing Trust for giving me a lifetime experience and one that I'll never forget. On their tall ship Tenacious http://jst.org.uk/our-tall-ships/tenacious/ I took part in a voyage from Melbourne to Adelaide in southern Australia. Many of the people on board had a disability like me. Mine is Multiple Sclerosis (MS) which is progressive and has progressed and is getting worse. It was great not to have to think about it for a while. I am now in a wheelchair as mobility and walking is impossible.. I was not on my own as many others had MS and other neurological diseases. Personally my life is a constant daily struggle. It has affected me in so many ways such as my balance and things like crippling fatigue and speech difficulties. Walking is near on impossible. I now have very scary falls. An ambulance has taken me to hospital now on two occasions after having to dial 000 when MS has got the better of me. Once I fell, hit my head on a table and ended up with three stitches in my head. The other time I fell in a disabled toilet? and hit my head with blood everywhere and again had to call an ambulance. When out of the wheelchair I have to use my upper body strength to hang onto something to keep me mobile and upright or use a walking frame. Thankfully I still have that body strength. It must be even more difficult for others who have lost theirs. Anyway back to the voyage, the crew were fantastic and even had a way of hoisting us high up the mast in our wheelchairs. The view up there was spectacular to say the least and I felt very safe. I do love the ocean and it has always been a big part of my life as this short film shows. https://open.abc.net.au/explore/96096 Going past Kangaroo Island and coming into Adelaide was a great experience and great to see. The people on board were great and I made many friends. As we got comfortable with each other our smiles got bigger and bigger which was a joy to see.
Thanks again to the Jubilee Sailing Trust.